Nuraainaa Diyana Mohd Salleh consoling her son Muhammad Rafeal Faliq Muhammad Fairuz, who suffers from acute lymphoblastic leukaemia. — NST picture by Hariff Hassan
KUALA LUMPUR: Its been tough going for the parents of Muhammad Rafeal Faliq Muhammad Fairuz.
The 2-year-old toddler was born with a hole in his heart and suffers from acute lymphoblastic leukaemia (ALL) as well.
At 23 days old, he was found to have ventrical septal defect and a successful heart surgery was done when he was 8 months old.
However, eight months later, this lactose-intolerant baby, who was very pale most of the time, was diagnosed with ALL.
Rafeal underwent two cycles of chemotherapy and the ALL went into remission.
Six months later, he relapsed and had another round of treatment and was in remission again.
Unfortunately, on March 17, Rafeal relapsed for the third time and will have to undergo a bone marrow or cord blood transplant (BMT).
His parents are at their wits’ end in coming to terms with their son’s health problems as they have to raise the remaining RM173,533 needed for the BMT at University Malaya Medical Centre after paying RM20,000 from their savings and Employees Provident Fund savings.
Nuraainaa Diyana Mohd Salleh, 28, said she had started working again as a front desk executive earning RM2,300 monthly after quitting for two years to take care of her son.
“I have finished my annual leave and I am now taking unpaid leave to take care of Rafeal.
“It has been tough since he was born. He and his year-old sister are both lactose-intolerant and need soya-based milk. We spend RM120 for two tins a week.”
Her husband, Muhammad Fairuz Razak, 29, is a marketing executive earning RM2,020 a month. He took four months’ unpaid leave last year to take care of their son.
“He is normally a very active and intelligent boy. But now he craves attention as he had just completed his chemotherapy of five daily three-hour sessions.
“A side effect of the chemotherapy is that he is suffering from very dry eyes so much that he cannot open his eyes.
“He complains of painful eyes and has not opened his eyes for three days.”
Those who wish to help him can send your cheques, with his name written on the back, made payable to The New Straits Times Press (M) Bhd, to: The Cashier, Finance Department/Charity Unit, The New Straits Times Press (M) Bhd, Balai Berita, No. 31, Jalan Riong, 59100 Kuala Lumpur, Malaysia.
Read more: Leukaemia boy needs help http://www.nst.com.my/nst/articles/25rafa/Article/#ixzz1JkgqdWJO
(via Leukaemia boy needs help)